Editorials
The Power of Unplugging
By Kevin Freiert My wife and I recently had the opportunity to take a trip to Israel. In addition to the wonderful sites, the new friendships we made with others in our tour group, and the joy of strengthening our faith; we by necessity had to just unplug from work. Sure, Israel has good internet…
Read MoreA Safe Place to Practice My Story
By Kevin Freiert Life has a way of filling up quickly. Having a rare disease, or being a caregiver to someone who does, makes every day feel a little busier, doctors’ appointments more frequent, and the list of things to remember a little longer. When asked to share your story, it is easy to lose…
Read More2022: A New Beginning
by Jamie Roger The last few years have been hard. Hard for humans, and equally as hard for a business that just started to feel growth before COVID put projects, funding, and plans at a standstill. 2022 felt like a new beginning. We were able to travel again to see so many familiar and lots…
Read MoreIt’s your first day
Right now, you are alone. When a college student arrives on campus for their first day of freshman year, they are typically alone. They haven’t yet found a close friend, they haven’t started classes yet to meet anyone, and their roommate is more than likely a stranger. They are a single human trying to get…
Read MoreLost is a Starting Point.
Lost is a starting point. It’s okay to be lost and not in control. But nothing is going to change if you don’t start. Start talking to someone, start educating yourself, start finding other people who may be lost. The most valuable component of your mental health is being aware of it, and what you…
Read MoreAll I have to do is tell my story?
Attending conferences has played a beneficial role in my understanding of the importance of my work. I believe that in order to succeed at what you are doing you need a clear understanding of a shared goal but also an internal motivation to achieve that goal. I am also aware that the best way for…
Read MoreWelcome to Narnia
New beginnings aren’t always scary, Right? In February I decided to open the door to a world that I knew very little about. I had a willingness to embark on this adventure but no idea what I would find. Turns out, I was right about how foreign this new world was (and not just the…
Read MoreWe Don’t Have 5 years!!
The moment was awkward. We had invited in a handful of patients who had the disease we were working to treat to our annual Development Team all-hands meeting. We wanted to learn from them and to be motivated by them. They poured their hearts out to us. They told us about their lives since the…
Read MoreHow to Incorporate Family Caregivers in Chronic Care Management
We need to help people understand their rights to information (and to privacy) when they choose to help care for a family member. The article points out many barriers to family members effectively assisting in the care of loved ones. http://bit.ly/2DLfTD6 This situation seems similar to writing one’s last will and testament. It needs to happen…
Read MoreHow many blessings can be squeezed into 20 years?
Twenty years ago, today, I woke up and had cancer. I had no idea what the day would bring. It had been about two months since I was diagnosed with myxoid liposarcoma in my left thigh.
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