Posts Tagged ‘patient advocates’
UPDATE: Online Course Library Grows
Salem Oaks’ portfolio of online courses is growing rapidly. Since last month, we launched two new modules in the R&D decision-making series, bringing the total to four. Check them out and see where we are going next!Read More
Bringing Hope to Patients as Partners
At Patients as Partners, our panel spoke about HOPE and asked the audience to think about a few questions.
–What is the power of hope?
–How much is hope worth?
–How much value do you create each time you give or receive hope?
Helping Patients Influence R&D
Healthcare is rapidly changing. Patients, their families, and their advocates are playing a bigger role in decision-making about their care. In addition, the biopharmaceutical industry is realizing that patients can make a valuable contribution to the entire R&D process. They are looking for patients (and others) who can influence the direction of research, the design,…Read More
All I have to do is tell my story?
Attending conferences has played a beneficial role in my understanding of the importance of my work. I believe that in order to succeed at what you are doing you need a clear understanding of a shared goal but also an internal motivation to achieve that goal. I am also aware that the best way for…Read More
This Symposium Was Truly Rare
Sometimes you get the chance to experience something that resets your expectations. The Salem Oaks team had the opportunity to attend the Rare Patient Advocacy Symposium in Philadelphia on May 19, 2018. The event was organized in partnership between Global Genes and the Orphan Disease Center at UPenn. Although I may have only recently jumped…Read More