Understanding Informed Consent for Gene Therapy for Friedreich’s Ataxia
Hope With Eyes Wide Open
The objective of this 5-Lesson module is to prepare you for what could be one of the biggest decisions of your, or your child’s, life: whether to enroll in a clinical study and more specifically a clinical study of an investigational gene therapy.
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We recommend that you view the lessons in sequence. The information builds on each lesson and subsequent lessons refer to information in previous lessons.
