Understanding Informed Consent for Gene Therapy for Friedreich’s Ataxia

Current Status
Not Enrolled
Get Started

Hope With Eyes Wide Open

The objective of this 5-Lesson module is to prepare you for what could be one of the biggest decisions of your, or your child’s, life: whether to enroll in a clinical study and more specifically a clinical study of an investigational gene therapy. 

Scroll down for links to each lesson

We recommend that you view the lessons in sequence. The information builds on each lesson and subsequent lessons refer to information in previous lessons.