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The Power of Unplugging
By Kevin Freiert My wife and I recently had the opportunity to take a trip to Israel. In addition to the wonderful sites, the new friendships we made with others in our tour group, and the joy of strengthening our faith; we by necessity had to just unplug from work. Sure, Israel has good internet…
Read MoreIntroducing Empowered Together
Guest Post When my daughter was diagnosed at six with Wiedemann Steiner Syndrome, we already knew we were on a rare path. She had missed milestones, communicated in unique ways, and displayed biological markers of a rare syndrome. I was learning on the fly and seeking out support wherever I could find it. The problem…
Read MoreA Safe Place to Practice My Story
By Kevin Freiert Life has a way of filling up quickly. Having a rare disease, or being a caregiver to someone who does, makes every day feel a little busier, doctors’ appointments more frequent, and the list of things to remember a little longer. When asked to share your story, it is easy to lose…
Read More“The group at Salem Oaks has and continues to develop a deep understanding of the science, research, and treatment landscape in the FA space.”
A customer testimonial One of our goals at FARA is to deliver high quality educational materials to our patient community to help them understand the drug development process so that they can effectively and confidently participate in research. Salem Oaks helped us to create a series of videos that have helped our patients understand the…
Read More“We couldn’t have done this without the Salem Oaks team.”
A customer testimonial COVID-19 caused disruption for many non-profits, even for those of us who predominantly work in a virtual environment. Barth syndrome is an ultra-rare condition. We are aware of approximately 150 people diagnosed with Barth syndrome in the US. We typically host a biennial conference on even years but due to the risk…
Read More2022: A New Beginning
by Jamie Roger The last few years have been hard. Hard for humans, and equally as hard for a business that just started to feel growth before COVID put projects, funding, and plans at a standstill. 2022 felt like a new beginning. We were able to travel again to see so many familiar and lots…
Read MoreAnything but Ordinary
Our experience at Global Genes Rare Patient Summit I think what needs to be pointed out in that title, is the word RARE. This conference is anything but ordinary. The attendees are amazing and consist of a diverse population of patients, experts, consultants, and advocates who are all teaming together to try to drive change…
Read MoreIt’s your first day
Right now, you are alone. When a college student arrives on campus for their first day of freshman year, they are typically alone. They haven’t yet found a close friend, they haven’t started classes yet to meet anyone, and their roommate is more than likely a stranger. They are a single human trying to get…
Read MoreHOW CAN WE HELP?
WE STRIVE TO DO WORK THAT BENEFITS THE PATIENT+ COMMUNITY Salem Oaks is in the final stages of installing its first big wave of online learning modules. If you haven’t checked them out yet, you can learn more at http://salemoaks.com/e-learning/ . The modules that we have released thus far have been about the decision making…
Read MoreOpen Water Part 2: Discovery and Pre-Clinical Research
Salem Oaks is proud to launch the third module in our series on Decision Making in Pharmaceutical Research and Development. The underlying goal of this series is to help equip you to be part of a Research and Development Team. The first module, Decisions Decisions, gave a high-level overview of the major decisions throughout the…
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